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KARA, CAREGIVER HPP STAR AND
QUINN, WHO LIVES WITH HPP

Life with HPP

STRENSIQ® (asfotase alfa) is the first and only prescription medicine used to treat people with perinatal/infantile- and juvenile-onset hypophosphatasia (HPP).

Hear about the journey forward from people being treated with STRENSIQ.

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LET’S CONNECT

WHICH BEST
DESCRIBES YOU?

I think I (or someone I care about) could have HPP, but I don’t know the next steps.
I am a person living with or caring for someone with HPP, wanting to learn more about treatment.
I am a person living with or caring for someone with HPP, currently receiving treatment with STRENSIQ.
Talk to someone either living with or caring for someone with HPP.
Listen to an HPP healthcare professional and a patient or caregiver talk about the condition.
Talk to someone either living with or caring for someone with HPP and treating with STRENSIQ.
Learn more about what I can expect with STRENSIQ.
Listen to an HPP healthcare professional and a patient or caregiver talk about STRENSIQ.
Learn more about starting or administering STRENSIQ.
Talk to someone either living with or caring for someone with HPP and treating with STRENSIQ.
Listen to an HPP healthcare professional and a patient or caregiver talk about STRENSIQ.
Learn more about what I can expect with STRENSIQ.
Receive guidance on administering STRENSIQ.

Want information about HPP?

We recommend THAT YOU…

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Attend an HPP Educational Event

Register to attend an educational, no-cost HPP webinar and/or live event. You’ll hear from someone whose life has been impacted by HPP, as well as a healthcare provider specializing in HPP.

Register now
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Connect with OneSource™

OneSource™ is a complimentary, personalized patient support program offered by Alexion. When you enroll in the program, you’ll work with a dedicated team of people with expertise in rare conditions and health insurance.

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REQUEST A STARTER KIT

Coping with HP

Fill out the form below to connect with an HPP STAR.

Required
Required

Hypophosphatasia (HPP) is often misdiagnosed as other conditions. But the more physicians out there, the more parents out there that are aware of the symptoms, they can ask about it and potentially get a correct diagnosis quicker than they otherwise would.”

Becky, Caregiver HPP STAR

We all have our challenges, and HPP is mine. If I can help someone else because of my experiences, I am grateful.”

Sharon, HPP STAR

I think the Peer Connects program is a nice way to communicate with patients on a one-on-one basis, hear their story, share our story, and really just help people through their diagnosis.”

Becky, Caregiver HPP STAR

HPP Support

Explore support options, find helpful downloads,
and meet other people living with HPP.

HPP Resources

courage TO USE Strensiq

STRENSIQ is an injectable prescription medication
you can take at home as part of your routine.

HOW TO USE STRENSIQ

Life with strensiq

When I think about the journey that Quinn has been on and continues on, I see him finding his sense of independence—every day, every week, every year.”

Kara, Caregiver HPP STAR

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IMPORTANT SAFETY INFORMATION & INDICATION FOR STRENSIQ® (asfotase alfa)

STRENSIQ may cause serious side effects, including

  • Serious allergic (hypersensitivity) reactions happened in some people who use STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency room right away if you or your loved one have any of the signs and symptoms of a serious allergic reaction, including
    • Difficulty breathing
    • Swelling of your eyes, lips, or tongue
    • Hives
    • Feeling faint
    • Nausea or vomiting
    • Dizziness
    • Itching of your lips, tongue, or throat
    • Choking sensation
  • Skin thickening or pits at the injection site (lipodystrophy) has happened several months after using STRENSIQ.
  • Calcium buildup in the eyes and kidneys can occur if you or your loved one have HPP. Your healthcare provider should check the eyes and kidneys while you or your loved one use STRENSIQ.
  • Decreased efficacy. Contact your healthcare provider if you or your loved one notice STRENSIQ is no longer working or experience worsening symptoms of HPP (e.g., increased respiratory support, increased difficulty walking, new fractures).

The most common side effects of STRENSIQ include local skin injection-site reactions (red skin patches, bruising, color change, pain, itching, thinning, swelling, pits, and bumps) and calcium buildup in your eyes and kidneys.

STRENSIQ may affect other lab test results, therefore it is important that you present your Medical Alert Card to your healthcare team so they are aware that you are being treated with an alkaline phosphatase (ALP) replacement therapy which may cause incorrect results on certain laboratory tests.

Tell your doctor if you are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed.

These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects. You may report side effects to the US Food and Drug Administration at 1‑800‑FDA‑1088.

INDICATION
What is STRENSIQ?
STRENSIQ is a prescription medicine used to treat people with perinatal/infantile- and juvenile-onset hypophosphatasia (HPP).

Please see STRENSIQ full Prescribing Information, including Patient Information and Instructions for Use.
IMPORTANT SAFETY INFORMATION & INDICATION FOR STRENSIQ® (asfotase alfa)

STRENSIQ may cause serious side effects, including

  • Serious allergic (hypersensitivity) reactions happened in some people who use STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency room right away if you or your loved one have any of the signs and symptoms of a serious allergic reaction, including
    • Difficulty breathing
    • Swelling of your eyes, lips, or tongue
    • Hives
    • Feeling faint
    • Nausea or vomiting
    • Dizziness
    • Itching of your lips, tongue, or throat
    • Choking sensation
  • Skin thickening or pits at the injection site (lipodystrophy) has happened several months after using STRENSIQ.
  • Calcium buildup in the eyes and kidneys can occur if you or your loved one have HPP. Your healthcare provider should check the eyes and kidneys while you or your loved one use STRENSIQ.
  • Decreased efficacy. Contact your healthcare provider if you or your loved one notice STRENSIQ is no longer working or experience worsening symptoms of HPP (e.g., increased respiratory support, increased difficulty walking, new fractures).

The most common side effects of STRENSIQ include local skin injection-site reactions (red skin patches, bruising, color change, pain, itching, thinning, swelling, pits, and bumps) and calcium buildup in your eyes and kidneys.

STRENSIQ may affect other lab test results, therefore it is important that you present your Medical Alert Card to your healthcare team so they are aware that you are being treated with an alkaline phosphatase (ALP) replacement therapy which may cause incorrect results on certain laboratory tests.

Tell your doctor if you are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed.

These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects. You may report side effects to the US Food and Drug Administration at 1‑800‑FDA‑1088.

INDICATION
What is STRENSIQ?
STRENSIQ is a prescription medicine used to treat people with perinatal/infantile- and juvenile-onset hypophosphatasia (HPP).

Please see STRENSIQ full Prescribing Information, including Patient Information and Instructions for Use.